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The Cornelia de Lange Syndrome (CDLS) foundation is a family support organization which exists to ensure early and accurate diagnosis of CDLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CDLS and others with similar characteristics make informed decisions throughout their lives. Reaching out, providing help and giving hope.

Mission: To facilitate global collaboration and fund world-class research, medical education, and treatment trials, that make a positive impact on the lives of people with ME/CFS, Long COVID and related diseases. Vision: Significantly improve patient outcomes while advancing a cure. Goals: Our primary goals are to: frame clear disease mechanisms and models; find effective treatments and diagnostic markers; increase accurate diagnoses; and ensure access to quality care.

At POGO, we give kids with cancer the support they need–not just during the difficult time around therapy, but for years after when they can face complications from the treatments that saved them. Each year in Ontario, 400 children are diagnosed with cancer and 4,000 families are currently going through active treatment or follow up care. Many of these families are accessing POGO’s financial assistance program for the unexpected costs associated with a childhood cancer diagnosis. While 82% of children survive, many survivors of brain tumours and other cancers may face learning challenges later in life. POGO counsellors work with these young people to help them match their dreams with their abilities and move on to college or university. POGO also maintains an aggressive research agenda. We are asking the types of questions that will benefit these young cancer patients, their families and survivors—in Ontario and around the world—today and well into the future.

Promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for Polycystic Kidney Disease and improve the lives of all it affects... program supports PKD scientists and their research. The Foundation also provides scientific ... The Foundation raises awareness of PKD through national, regional ...

The mission of Hearing Health Foundation (formerly called Deafness Research Foundation) is to prevent and cure hearing loss through ground breaking research.

The Vasculitis Foundation supports and empowers our community through education, awareness and research.

Our mission is to save the lives and support the families of children and young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities.

Bolstered by our fierce community of donors and volunteers, St. Michael’s Foundation mobilizes people, businesses and foundations to support St. Michael’s Hospital and Providence Healthcare in taking on some of the world’s toughest health challenges. And at the heart of it all is a bold and enduring commitment to health equity.

The American Brain Foundation supports vital research and education to discover causes, improved treatments, and cures for brain and other nervous system diseases.  

Guiding Eyes for the Blind--Provides guide dogs for the blind

OUR MISSION LUNGevity Foundation is firmly committed to making an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as providing community, support, and education for all those affected by the disease. OUR VISION A world where no one dies of lung cancer. OUR VALUES We believe it's important for our board, our staff, and our constituents to know the values that drive all our actions. We are: FOCUSED ON SURVIVORSHIP 100% dedicated to increasing and improving lung cancer survivorship RESULTS-ORIENTED Always challenging the status quo and seeking a more efficient and effective way Rigorously measuring our performance to ensure maximum impact COMPASSIONATE AND RESPECTFUL Building and sustaining a community for all those affected by lung cancer Respectful of all people with lung cancer, caregivers, loved ones, medical professionals, donors, board members, and employees COLLABORATIVE Committed to being good partners and strategic collaborators to enable us to reach our goal more quickly and efficiently, including through our scientific endeavors TRANSPARENT Fiscally responsible and holding ourselves to the highest ethical standards

The Cystinosis Research Network, founded in 1996, grew out of the need to find improved treatments and a cure for cystinosis. Cystinosis Research Network is comprised entirely of volunteers that raise funds for cystinosis research, increase cystinosis education and awareness, and support cystinosis families.