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smashSMARD is a non-profit 501(c)3 organization whose mission is to increase awareness of SMARD1 and the IGHMBP2 gene mutation in order to fund research that will lead to treatments and cures.

Hospice of West Alabama provides support and care for persons in the last phases of incurable disease so they may live as fully and as comfortably as possible. Hospice recognizes dying as part of the normal process of living and focuses on maintaining the quality of life. Hospice affirms life and neither hastens nor postpones death. Hospice is a coordinated program of palliative and supportive services provided in both home and inpatient settings. Hospice provides physical, psychological, social, and spiritual care for dying persons and their families.

This chapter is now merged and part of the Amyotrophic Lateral Sclerosis Association, EIN: 13-3271855, doing business as The ALS Association.

The Alzheimer's & Dementia Resource Center is the Central Florida community resource for families and non-professional care partners affected by Alzheimer’s disease and related dementias through education, advocacy, research opportunities, and compassionate support. The Alzheimer's & Dementia Resource Center focuses on "the forgotten victim," the care partner, who is coping with a difficult long-term disease, isolation, depression, and stress. By assisting families in their caregiving role with a wide variety of services, ADRC aims to increase the quality of life for those living with dementia and their care partners by reducing stress, promoting care partner wellness, and providing disease-specific education and support programs. The other important aspect of the Alzheimer's & Dementia Resource Center's mission is finding a cure for Alzheimer's disease and related dementias. ADRC has a contract with the state of Florida's Brain Bank program to coordinate enrollment and brain autopsies for a 23-county area, working with leading medical facilities such as Orlando Health.  The program coordinates the donation of brain tissue of those who have died of Alzheimer's and related diseases, thus providing national and worldwide scientists with access to rapid retrieval tissue for research studies. The program also provides families with closure through a definitive patient diagnosis and helps them understand their potential genetic risk of contracting dementia. Presently, only a brain autopsy at the time of death can confirm that an individual definitely suffered from Alzheimer's disease or one of the other 200 forms of dementia.

Alzheimer's Texas is dedicated to eliminating Alzheimer's disease through the advancement of research and to enhance care and support for individuals, their families, and caregivers.

Called by God, Our Lady of Peace gently comforts and cares for those most in need near the end of their lives, wherever they call home, regardless of means.

Holston United Methodist Home for Children provides hope and healing for a brighter future by sharing the love of Jesus with children and families struggling with life's challenges.

Life’s WORC offers comprehensive services and support to more than 2,000 people and families with intellectual disabilities and autism in Queens, Nassau, and Suffolk counties. Our residential locations provide supportive homes to over 250 people throughout the noted communities including East Harlem. Additional programs for both families and people with developmental disabilities and autism include at-home support, skills development and behavioral intervention, social recreational programs, and vocational training opportunities. We also offer collaborative school linkage programs with both Long Island and NYC school districts supporting people and families in need of applied behavior analysis intervention.

Our mission is to educate the public and medical community about preventing and reversing multiple causes of memory loss, dementia, and Alzheimer’s Disease, and to advocate for new testing and treatment protocols. To accomplish our mission, we use live presentations, social and multimedia outreach, online resources, and a collaborative network of like-minded individuals and organizations to spread the good news.

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

The Mission of Chestnut Hill Benevolent Association is to provide a healing refuge and services that minister to the needs of mankind with Christian Science nursing.

The mission of Lighthouse for the Blind of Fort Worth is to empower individuals who are blind through superior training, meaningful employment and specialized rehabilitation services so that they lead full lives with the highest level of independence and quality of life.