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NORD represents 1 in 10 Americans who have rare diseases with programs of advocacy, education, research and patients services. It serves as the voice of the rare disease community on important issues of public policy. It also provides information on rare diseases in understandable language for patients and their families, with referrals to support groups and other helpful resources. It encourages research on new diagnostics and treatments and administers patients assistance programs. NORD mentors rare disease support groups so that they can more effectively help their members. It serves as the point of connection between the patient community and key government agencies, such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Nearly 150 patient organizations are members of NORD and look to NORD for guidance, mentoring and leadership.
Hospice of Michigan's mission is to ensure quality of life and a comfortable, peaceful death for all patients receiving our care, and provide support for their loved ones. We will serve everyone in our communities who needs and seeks our care and strive to improve the state of end-of-life care.
The Seeing Eye is a philanthropic organization whose mission is to enhance the independence, dignity and self-confidence of blind people through the use of Seeing Eye dogs.
As the Drug Discovery Engine for ALS, the ALS Therapy Development Institute (ALS TDI) discovers and invents ALS treatments and partners to advance them into clinical trials. It is the first and largest nonprofit biotech focused 100% on ALS research. ALS TDI incorporates all aspects of drug discovery under one roof to find treatments as quickly as possible. Located in Watertown, MA, ALS TDI employs researchers with over 300 years of combined experience and expertise across all areas of drug discovery. ALS TDI is recognized as an international leader in preclinical and translational ALS research, and partners with pharmaceutical companies and biotechs around the world. Awarded the highest nonprofit rating – four stars – on Charity Navigator, ALS TDI spends 87 cents of every dollar raised on finding effective treatments and cures for ALS.
The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the approximately one million with PD in the United States live life to the fullest in the face of this chronic, neurological disorder.
Clearbrook is committed to being a leader in creating innovative opportunities, services and supports for people with disabilities. We serve people over a range of ages and disabilities from children diagnosed with developmental delays at birth to the unique needs of seniors with disabilities and all ages in between. Annually, we support over 8,000 individuals as well as their families in 15 counties, in over 160 communities and 50 locations throughout Chicago, the suburbs, and northern Illinois. We are proud to be the largest provider of home-based services in Illinois.
The mission of Joslin Diabetes Center is to prevent, treat and cure diabetes. Our vision is a world free of diabetes and its complications.
National Breast Cancer Foundation's (NBCF) mission is to save lives through early detection and to provide mammograms for those in need.Our mission includes increasing awareness through education, providing diagnostic breast care services for those in need, and providing nurturing support services.
Every Mother Counts is a non-profit organization dedicated to making pregnancy and childbirth safe for every mother. They inform, engage, and mobilize new audiences to take actions and raise funds that support maternal health programs around the world.
Smile Train is an international children’s charity with a sustainable approach to a single, solvable problem: cleft lip and palate. Millions of children in developing countries with unrepaired clefts live in shame, but more importantly, have difficulty eating, breathing and speaking. Cleft repair surgery is simple, and the transformation is immediate. Our sustainable model provides training and funding to empower local doctors in 85+ developing countries to provide 100%-free cleft repair surgery in their communities. We use the “teach a man to fish” model focusing on training local doctors to perform cleft repairs in their communities. Those doctors then go on to train other doctors creating a long-term, sustainable system. Patients see their smile for the first time, parents cry tears of joy, lives and communities are changed forever. As a result of our efficiency and with the support of our donors and partners around the world, Smile Train has transformed the lives of more than one million children by giving them the power of a smile -- that's roughly 350 surgeries a day and 128,000+ every year.
We are honored to provide resources and support to the millions of people living with Alzheimer's disease and to their families, friends and caregivers who support them on a daily basis. If you or someone in your family has been diagnosed with Alzheimer's disease or another form of dementia, we are here to help. You can get free, confidential counseling and support today. The End Alz Association is proud to be a leader in the fight to #EndAlz but we couldn't do it without your support. Please join us and make a donation today. Together, we can #EndAlz!
With the success of the Salk vaccine in the mid 1950s, the March of Dimes turned its focus on birth defects, low birth weight and infant death. Over the past 75 years, March of Dimes' cutting edge research and innovative programs have saved millions of babies from death or disability. We are committed to educating medical professionals and the public, supporting research, providing comfort and support to families in NICUs, and advocating for moms and babies. All mothers and babies deserve access to the tools they need for the success of their families, so that the future is brighter for all. Every Mom. Every Baby.